I was sure by now, God, that You would have reached down and wiped our tears away,
stepped in and saved the day. But once again, I say amen and it's still raining
as the thunder rolls I barely hear You whisper through the rain, "I'm with you"
and as Your mercy falls I raise my hands and praise the God who gives and takes away.
Chorus: And I'll praise you in this storm and I will lift my hands
for You are who You are no matter where I am and every tear I've cried You hold in your hand You never left my side and though my heart is torn I will praise You in this storm!
....this is part of a song that has been going through my head this week. I wrote in my journal, "when is it going to end? When will I get Ben back?" Sometimes I don't know how long I can go on. I ask why won't Jesus take this away? I know that He can just touch Ben and heal him so why does He not do it? In these times just like the song says I can barely hear Him whisper through the rain, "I am with you!" It may be weak but I can hear it! As soon as I put my doubts and fears to the side and allow Jesus to love on me I can hear it loud and clear...I AM WITH YOU! Oh how He loves me!
Of course Jesus is faithful to answer my question...when are you going to bring back to me by Him taking steps in Ben's healing this week!
Some of the things Ben did/accomplish...
~ Like I mentioned in the last update Ben's trach is out and he has had no respiratory issues since!
~ He played catch with Mary and I for a long time...he was consistant with it.
~ When I asked Ben if he wanted a blanket Ben mouthed NO with a lil air/voice with it
~ After I wrote a letter on a piece of paper Ben wrote it too...of course it was my name that I had him write!
~ Ben got his last cast off!
~ He stood up with the Physical therapist....she supported him quite a bit but he stretched out his back, lifted his head and stood tall!
~ Ben had 2 really good last few days with the speech therapist! She was really happy with what she saw and that he was finally showing off to her and not just the other therapists.
~ He was put on a pedal machine that stimulates his muscles in his legs and he was pedaling 10-15% on his own and his Physical therapists said that is the BEST she has ever seen any patient do it on that level of injury. Ben went steady for 30 min and he had concentration and determination on his face!
He has been twitching a bit in his head and right arm so they did an EEG and found that he had slight seizure activity. The doctor said this is not uncommon for patients to get that are on the neuro stimulant drugs. They don't want to lower his stimulant drugs to decrease what he is doing but they cannot allow the seizure activity. They put him on a small dose of seizure medication and took an MRI but the results of the MRI are not in yet.
He has a new goal date of Nov 18! In one of my last blogs I put that he needs to do things in 10 sec with 80% accuracy. He needs to accomplish these things by then if not before to get in the big 6 wk rehab program! He is well on his way but he has a long way to go! I am so proud of what he has done! Ben is an amazing strong man who loves his Jesus! Jesus knows what He is doing in Ben's body and brain. Jesus is taking his time with Ben to show him that He is in control and that He is going to heal him but it takes time for the brain to heal!
1. Put Nov. 18th in your mind...pray over the time before that date that Ben will get to where he needs to be!
2. Pray the seizures will be GONE in Jesus name and that they will not get in the way of what Ben needs to do!
3. That Ben will continue to be consistant in what he is doing...within 10 sec and with 80% accuracy!
4. Torso strength so that he can do more physical things that would need his torso
5. Strength, patience, love, peace, security....from my Jesus to me while I am on this journey without Ben.
Love you all and thank you, thank you, thank you for your prayers and support!!