Monday, December 28, 2009
I'm back to a regular schedule...
(Ben and our niece Kyla...a few years ago)
I just got done giving Ben a razor shave and good tooth brushing and I did so well that he is now sleeping! Off to blogging I go! Ok, so like said above I am back to a regular schedule (somewhat) after running around like crazy the past few weeks! It has been tons of fun seeing all my family and some wonderful friends back in WA when I was there for a few days and then my parents and 2 lil bros for Christmas! Time has gone by quick and there have been some early mornings and late evenings!
On Christmas day we traveled back to my house and had some fun there with my family. We all slept in on Sat and that afternoon I got a few things done while Dad took Ben's truck to get the tires rotated and balanced. That evening we went to our good friends the Webbs for dinner and fun! Little did we know that we would play Phase 10 for hours! I will not comment on who cheated in the game to get it over with...I think we all contributed! It was a fun night overall! On Sunday we went to church and were all blessed! Later that afternoon we headed back up to Atlanta to take my lil bros to the airport. I then got to see Ben and love on him for a bit before crashing into my bed!
So, today is Monday! My parents rented a car and took off to Savannah, GA for a few days. I hear it is a wonderful place to visit and Ben and I will go there some day!
Ben has been doing well. Let me go back to the entry about the Baclofen pump trial. Ben muscles responded well to it and he was all loosey goosey! The down side is that he was very drowsy with it. At this point they have decided not to surgically insert the pump due to it making him so sleepy. It did I think give him a boost to at least realize those muscles were still there and Ben has been trying to do a few more things. His latest thing is reaching his arm up to rub his eyes and itch his nose! Oh he loves to itch his nose!
Ben continues to sip on water and juice and eat some applesauce, pudding and so on. He is doing well with moving his tongue around and swallowing well! They did a swallow eval on him and found that he can continue to have thin liquids and pureed foods but when they gave him some chopped peaches (which he loves) he swallowed them but would pocket them down his throat but way to close to his airway! So mashed bananas it is!
An update on where Ben goes next...I found a facility in WA that I liked and that I believe will be good for Ben and his continuing of impatient rehab. It is close to home and will give him what he needs in this next phase. I am still waiting on reports back from one in northern Cali as that is an option as well. The facility in WA will be looking into Ben's information the beginning of the year so until that point we are enjoying our time here. I will give you info as I get it!
Overall Ben continues to improve slowly but for sure surely! He amazes me with how strong and determined he is! I know that the Lord helps in everyday and Ben is communicating with Him everyday! Ben has it in him to get better but sometimes his brain is just not allowing him to do it yet or it is just moving slower then Ben wants! With the Lord Ben will get there!
1. Consistancy for Ben in yes/no answers and in following commands
2. Seizures to be controlled (had to add a 3rd medication d/t 2 small sz on last scan)
3. Muscles to relax so Ben can use them all more! We need loose muscles!!
4. Speech...this would be amazing for Ben to do at this point!
5. Direction on his next step and where we are to go next...WISDOM!
6. Ty (our friend/patient 2 doors down) was taken to the ICU today for some complications...please pray for him and his family!
7. Strength to continue on this journey that we are on!
I will leave you with this! I got a text from a friend today that said this..."In 2010, complete healing for Ben!!" This is going up in Ben's room and will be in my heart and prayers!
Love you all!!
at 4:14 PM