i know i always say that we are busy and that it's an understatement
but we are and i will leave it at that and with this of what happens
when we go crazzzzzy...
first a lil update on bens mouth! he has been healing nicely and
finally getting on some solid soft foods. ben is in heaven at the
moment because of this! still two of his meals consist of very soft
or liquid foods and then one meal is a lil more chewing. if he chews
to much it still can be a bit sore at times. the pics below are a lil
of his progress. where his gap started and where it is now...
christmas has come and gone and so has new years. it was good
for us all around, as good as it can be! :) we did have a delightful
time together and with family. christmas brought exercise santa...
geesh santa, what you trying to say. we have both been getting on
the treadmill and bike it is tough work but its so good since i really
havent done anything for the past 1.5 months. and the garage is
coldy, hence the down vest and the grumpiness...
{bens sweet card to me}
{my parents let winston open his own present}
{christmas eve}
{ben reading the christmas story for us}
as adults in our family we don't
buy gifts for each other but yet we all go out as adults for an
activity. each year it changes who plans it. this year it was my
oldest brother and his wife. we started out at their house
and made bbq pizzas! we then took off in a huge limo
to the melting pot for dessert and then back home!
it was fun night...
{limo ride}
{melting pot}
ben continues to work hard everyday. i found him trying to tie
his shoes the other day! he knows how to do it still but his fingers
get a bit crossed up and don't work like he needs them too.
balancing has been getting better and he has started working
with fine motor skills, hence the legos with my nephew. he has
always loved his legos...i guess he will be getting a few small kits!
therapies have been rough for him because he says they are weak
and boring...and I agree. they are def not what he was getting before
by any means. we are working through this, talking to his doc and
looking into so other options.
ben has been going to an amazing chiropractor! he actully adjusts
ben in a safe way and we have seen some awesome changes in
his lower back. they are just starting to work with his neck and i
am praying that brings significant change!
a new year. it is hard for me to set resolutions. we just try to live
life to its fullest despite the hardships that come everyday in
this household. ben and i are def not where we want to be or
where we ever thought we would be but we are here. we are
here and we have to live each day to its fullest. every day those
days look different and each day we need to live...with whatever
comes our way.
i found this saying the other night. it is so true. patience is a fruit
of the spirit but sometimes it just doesnt seem very fruity. in some
other versions it also says longsuffering...
longsuffering and patience can be very bitter or become very
bitter. its not how we see it but how we deal with it. i can say that
ben and i have been held by the bitterness that patience brings but
also by the joy that it brings. the love it brings. the fruit it brings.
the faith it brings. i am not saying that i love patience or want any
more longsuffering but we need to make the choice in how we
handle it. trust me this journey demands (alot) patience and it
is so easy to fall into the bitterness of it. please lord open our
hearts to your fruit!
5 comments:
Dearest Ben & Katie,
So glad to read about Ben's teeth adjusting well. Yes, patience is a very hard thing to learn, for all of us!
You can give yourself a hug for being such a great companion to your husband Ben. One more year has passed and let's hope that 2013 will end in a better stage for Ben.
Hugs,
Mariette
Thanks for another update, now with photos! Hang in there my friends. Glad things are looking up for Ben. Prayers and Hugs!
Erercise Santa - ha! Glad he's able to get some solid foods again - bet that's been nice!
Well aren't you flexible (leg limo pic!). I love that tradition your family started! What a super fun idea.
I'm so proud of Ben. And hey! Those Legos? Don't knock them. Programming a Lego machine was one of the hardest things I've ever done (in grad school). :)
Glad to see your faces, even if I see them all the time on IG.
Keeping up your no sugar, my friend?? HMmmm? I am!
All my sons like legos. My oldest son when visiting from Afghanistan built one of those LARGE cruisers from Star Wars. Yes, patience, sweet patience. I am learning the meaning of "My brethren, count it all JOY when you fall into various trials, knowing that the testing of your faith produces patience. BUT let patience have its perfect work, that you may be perfect and complete, lacking nothing." James 1:2-4. Father chooses strange and mysterious ways to get His children where He wants them. You are in the palm of Father's hand, and as you said...Lord open our hearts to your fruit. I love you and continue to trust Father for you and your sweet Ben. Marion (Winston seemed to do pretty well opening his gift.)
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