sweet lucy...

 

 

we have some friends from who we know from growing up.

not alot of contact has been there since we have all grown up

and went in different directions. one of their daughters is now

married to a teacher my dad works with.

not to long ago my dad told me that one of their lil girls had cancer

it broke my heart, she is still so very young. i didn't know that they

had a caring bridge page up until a few weeks ago and would get updates

from my sister and my dad.

 

here is a little of her story as told by her mom...

On June 22nd, our 3 year-old Lucy was diagnosed with leukemia...

Lucy started having symptoms of something wrong shortly before we took her to her regular check-up. She didn't want to skip in the church parking lot with her daddy. Wasn't hungry, didn't have much energy - just wanted to sit and watch the other kids play. Took longer than usual naps she would cry when we picked her up because her ribs hurt and started talking about how her knee/leg hurt. The kicker, though, was when she started crying whenever she had to go up or down stairs - and she would put her hands down, wiggle herself gently to the ground, and then sort of crawl down the step. I'm embarrassed to say that I made her do this several times so I could watch her, and try to figure out what was going on.I told our doctor about Lucy's symptoms. She set us up with an appt for a knee xray, but then said she'd order some blood work "just to see" if there was anything abnormal.

Soon we got a call from our doctor saying that we needed to go over to the hospital to repeat the blood tests ASAP. Warning bells started going off in my brain. A lady came in to the waiting room and handed me an envelope. She said the tests did not need to be repeated - and we should take this directly over to our doctor's office. They were waiting for us.

That was when I knew it was bad. Seriously bad. I cried as a carried Lucy out to the car, then called my husband & told him to meet me at the doctor's office so I didn't have to hear this by myself.

Our doctor confirmed that Lucy has ALL - acute lymphoblastic leukemia - and that Seattle Children's Hospital was waiting for our arrival.Talk about life changing in a moment.

 

lucy will soon start another round of chemo. she got delayed a bit due to some low

numbers in her blood work. she is such a stong lil lady!

i ask that you keep lucy and all of her family in your prayers!

they def need a miracle to heal this amazing girl! 

if you would like to send her a card or some treats please email

me at benandkatierye@hotmail.com for further info!

 

and lucy and family this song is for you too...it has blessed us to the heart...

 

a dear friend sent this song for me to listen to. she had been praying over us

and also singing this song over us as well. i was super blessed by it so i

wanted to share it with you all. it is one of those songs that we will be playing

in the car every morning {because were always in the car in the morning} and

remembering that jesus is sovereign and he is always with us...

 

 

 

Sovereign in the mountain air. Sovereign on the ocean floor.
With me in the calm. With me in the storm.

Sovereign in my greatest joy, In my deepest cry
With me in the dark, With me at the dawn

In your everlasting arm, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

Sovereign in the mountain, Sovereign on the ocean floor
With me in the calm, With me in the storm

Sovereign in my greatest joy, Sovereign in my deepest cry
With me in the dark, With me at the dawn

In your everlasting arms, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

God whatever comes my way, I will trust you

All my hopes, All I need, Held in your hands
All my life, All of me, Held in your hands

All my fears, All my dreams, Held in your hands
All my hopes, All I need, Held in your hands

All my life, All of me, Held in your hands
All my fears, All my dreams, Held in your hands

In your everlasting arms, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

God whatever comes my way, I will trust you
God whatever comes my way, I will trust you

peace, fix, stay...

 

my face is shining upon you, beaming out peace that transends all understanding.

you are surrounded by a sea of problems, but you are face to face with me, your peace.

as long as you focus on me, you are safe. if you gaze to long at the myriad of problems

around you, you will sink under the weight of your burdens.

 

when you start to sink, simply call out, "help me Jesus!" and i will lift you up!

the closer you live to me, the safer you are. circumstances around you are undulating,

and there are treacherous-looking waves in the distance. fix your eyes on me, the one

who never changes. by the time those waves reach you, they will have shrunk to

proportions of my design. i am always beside you, helping you face todays waves.

the future is a phantom, seeking to spook you. laugh at the future. stay close to me

 

"and the peace of God, which transcends all understanding, will guard your hearts

and your minds in Christ Jesus." phil 4:7

 

"but when he saw the wind, he was afraid and, beginning to sink,

cried out, “Lord, save me!” matt 14:30

 

"fixing our eyes on Jesus, the pioneer and perfecter of faith. For the joy set before

him he endured the cross, scorning its shame, and sat down at the right

hand of the throne of God." heb 12:2

 

jesus calling, january 15

 

 

holler...

i know i always say that we are busy and that it's an understatement

but we are and i will leave it at that and with this of what happens

when we go crazzzzzy...

 

 

first a lil update on bens mouth! he has been healing nicely and

finally getting on some solid soft foods. ben is in heaven at the

moment because of this! still two of his meals consist of very soft

or liquid foods and then one meal is a lil more chewing. if he chews

to much it still can be a bit sore at times. the pics below are a lil

of his progress. where his gap started and where it is now...

christmas has come and gone and so has new years. it was good

for us all around, as good as it can be! :) we did have a delightful

time together and with family. christmas brought exercise santa...

geesh santa, what you trying to say. we have both been getting on

the treadmill and bike it is tough work but its so good since i really

havent done anything for the past 1.5 months. and the garage is

coldy, hence the down vest and the grumpiness...

 

 

 {bens sweet card to me}

 

 {my parents let winston open his own present}

 

 {christmas eve}

 

{ben reading the christmas story for us}

 

 

 

as adults in our family we don't

buy gifts for each other but yet we all go out as adults for an

activity. each year it changes who plans it. this year it was my

oldest brother and his wife. we started out at their house

and made bbq pizzas! we then took off in a huge limo

to the melting pot for dessert and then back home!

it was fun night...

{limo ride}

 

 

 {melting pot}

 

 

 

ben continues to work hard everyday. i found him trying to tie

his shoes the other day! he knows how to do it still but his fingers

get a bit crossed up and don't work like he needs them too.

balancing has been getting better and he has started working

with fine motor skills, hence the legos with my nephew. he has

always loved his legos...i guess he will be getting a few small kits!

therapies have been rough for him because he says they are weak

and boring...and I agree. they are def not what he was getting before

by any means. we are working through this, talking to his doc and

looking into so other options.

ben has been going to an amazing chiropractor! he actully adjusts

ben in a safe way and we have seen some awesome changes in

his lower back. they are just starting to work with his neck and i

am praying that brings significant change!

 

 

 

a new year. it is hard for me to set resolutions. we just try to live

life to its fullest despite the hardships that come everyday in

this household. ben and i are def not where we want to be or

where we ever thought we would be but we are here. we are

here and we have to live each day to its fullest. every day those

days look different and each day we need to live...with whatever

comes our way.

i found this saying the other night. it is so true. patience is a fruit

of the spirit but sometimes it just doesnt seem very fruity. in some

other versions it also says longsuffering...

longsuffering and patience can be very bitter or become very

bitter. its not how we see it but how we deal with it. i can say that

ben and i have been held by the bitterness that patience brings but

also by the joy that it brings. the love it brings. the fruit it brings.

the faith it brings. i am not saying that i love patience or want any

more longsuffering but we need to make the choice in how we

handle it. trust me this journey demands (alot) patience and it

is so easy to fall into the bitterness of it. please lord open our

hearts to your fruit!

oh blogger...

so i have a post ready to go but no photos!

i have the photos but for some reason

blogger is not doing so hot on this level

and i cannot upload any photos.

i did a lil googling and found that i am

not the only one that is having issues.

seems like they are working on the

issue.

as soon as i can upload them i will

post the next blog update!

anyone else having these issues...

 

and just after i wrote all this my computer

died...again! good thing blogger saves

as you go! ha!