Sunday, January 27, 2013

sweet lucy...

 
 
we have some friends from who we know from growing up.
not alot of contact has been there since we have all grown up
and went in different directions. one of their daughters is now
married to a teacher my dad works with.
not to long ago my dad told me that one of their lil girls had cancer
it broke my heart, she is still so very young. i didn't know that they
had a caring bridge page up until a few weeks ago and would get updates
from my sister and my dad.
 
here is a little of her story as told by her mom...
On June 22nd, our 3 year-old Lucy was diagnosed with leukemia...
Lucy started having symptoms of something wrong shortly before we took her to her regular check-up. She didn't want to skip in the church parking lot with her daddy. Wasn't hungry, didn't have much energy - just wanted to sit and watch the other kids play. Took longer than usual naps she would cry when we picked her up because her ribs hurt and started talking about how her knee/leg hurt. The kicker, though, was when she started crying whenever she had to go up or down stairs - and she would put her hands down, wiggle herself gently to the ground, and then sort of crawl down the step. I'm embarrassed to say that I made her do this several times so I could watch her, and try to figure out what was going on.I told our doctor about Lucy's symptoms. She set us up with an appt for a knee xray, but then said she'd order some blood work "just to see" if there was anything abnormal.
Soon we got a call from our doctor saying that we needed to go over to the hospital to repeat the blood tests ASAP. Warning bells started going off in my brain. A lady came in to the waiting room and handed me an envelope. She said the tests did not need to be repeated - and we should take this directly over to our doctor's office. They were waiting for us.
That was when I knew it was bad. Seriously bad. I cried as a carried Lucy out to the car, then called my husband & told him to meet me at the doctor's office so I didn't have to hear this by myself.
Our doctor confirmed that Lucy has ALL - acute lymphoblastic leukemia - and that Seattle Children's Hospital was waiting for our arrival.Talk about life changing in a moment.
 
lucy will soon start another round of chemo. she got delayed a bit due to some low
numbers in her blood work. she is such a stong lil lady!
i ask that you keep lucy and all of her family in your prayers!
they def need a miracle to heal this amazing girl! 
if you would like to send her a card or some treats please email
me at benandkatierye@hotmail.com for further info!
 
and lucy and family this song is for you too...it has blessed us to the heart...
 
a dear friend sent this song for me to listen to. she had been praying over us
and also singing this song over us as well. i was super blessed by it so i
wanted to share it with you all. it is one of those songs that we will be playing
in the car every morning {because were always in the car in the morning} and
remembering that jesus is sovereign and he is always with us...
 
 
 
Sovereign in the mountain air. Sovereign on the ocean floor.
With me in the calm. With me in the storm.

Sovereign in my greatest joy, In my deepest cry
With me in the dark, With me at the dawn

In your everlasting arm, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

Sovereign in the mountain, Sovereign on the ocean floor
With me in the calm, With me in the storm

Sovereign in my greatest joy, Sovereign in my deepest cry
With me in the dark, With me at the dawn

In your everlasting arms, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

God whatever comes my way, I will trust you

All my hopes, All I need, Held in your hands
All my life, All of me, Held in your hands

All my fears, All my dreams, Held in your hands
All my hopes, All I need, Held in your hands

All my life, All of me, Held in your hands
All my fears, All my dreams, Held in your hands

In your everlasting arms, All the pieces of my life
From beginning to the end, I can trust you

In your never failing love, You work everything for good
God whatever comes my way, I will trust you

God whatever comes my way, I will trust you
God whatever comes my way, I will trust you

Thursday, January 17, 2013

peace, fix, stay...

 
my face is shining upon you, beaming out peace that transends all understanding.
you are surrounded by a sea of problems, but you are face to face with me, your peace.
as long as you focus on me, you are safe. if you gaze to long at the myriad of problems
around you, you will sink under the weight of your burdens.
 
when you start to sink, simply call out, "help me Jesus!" and i will lift you up!
the closer you live to me, the safer you are. circumstances around you are undulating,
and there are treacherous-looking waves in the distance. fix your eyes on me, the one
who never changes. by the time those waves reach you, they will have shrunk to
proportions of my design. i am always beside you, helping you face todays waves.
the future is a phantom, seeking to spook you. laugh at the future. stay close to me
 
"and the peace of God, which transcends all understanding, will guard your hearts
and your minds in Christ Jesus." phil 4:7
 
"but when he saw the wind, he was afraid and, beginning to sink,
cried out, “Lord, save me!” matt 14:30
 
"fixing our eyes on Jesus, the pioneer and perfecter of faith. For the joy set before
him he endured the cross, scorning its shame, and sat down at the right
hand of the throne of God." heb 12:2
 
jesus calling, january 15
 
 


Sunday, January 13, 2013

holler...

i know i always say that we are busy and that it's an understatement
but we are and i will leave it at that and with this of what happens
when we go crazzzzzy...
 
 
first a lil update on bens mouth! he has been healing nicely and
finally getting on some solid soft foods. ben is in heaven at the
moment because of this! still two of his meals consist of very soft
or liquid foods and then one meal is a lil more chewing. if he chews
to much it still can be a bit sore at times. the pics below are a lil
of his progress. where his gap started and where it is now...



christmas has come and gone and so has new years. it was good
for us all around, as good as it can be! :) we did have a delightful
time together and with family. christmas brought exercise santa...
geesh santa, what you trying to say. we have both been getting on
the treadmill and bike it is tough work but its so good since i really
havent done anything for the past 1.5 months. and the garage is
coldy, hence the down vest and the grumpiness...
 
 
 {bens sweet card to me}
 
 {my parents let winston open his own present}
 
 {christmas eve}
 
{ben reading the christmas story for us}
 
 
 
as adults in our family we don't
buy gifts for each other but yet we all go out as adults for an
activity. each year it changes who plans it. this year it was my
oldest brother and his wife. we started out at their house
and made bbq pizzas! we then took off in a huge limo
to the melting pot for dessert and then back home!
it was fun night...

{limo ride}
 
 
 {melting pot}
 
 
 
ben continues to work hard everyday. i found him trying to tie
his shoes the other day! he knows how to do it still but his fingers
get a bit crossed up and don't work like he needs them too.
balancing has been getting better and he has started working
with fine motor skills, hence the legos with my nephew. he has
always loved his legos...i guess he will be getting a few small kits!
therapies have been rough for him because he says they are weak
and boring...and I agree. they are def not what he was getting before
by any means. we are working through this, talking to his doc and
looking into so other options.
ben has been going to an amazing chiropractor! he actully adjusts
ben in a safe way and we have seen some awesome changes in
his lower back. they are just starting to work with his neck and i
am praying that brings significant change!
 
 
 
a new year. it is hard for me to set resolutions. we just try to live
life to its fullest despite the hardships that come everyday in
this household. ben and i are def not where we want to be or
where we ever thought we would be but we are here. we are
here and we have to live each day to its fullest. every day those
days look different and each day we need to live...with whatever
comes our way.


i found this saying the other night. it is so true. patience is a fruit
of the spirit but sometimes it just doesnt seem very fruity. in some
other versions it also says longsuffering...
longsuffering and patience can be very bitter or become very
bitter. its not how we see it but how we deal with it. i can say that
ben and i have been held by the bitterness that patience brings but
also by the joy that it brings. the love it brings. the fruit it brings.
the faith it brings. i am not saying that i love patience or want any
more longsuffering but we need to make the choice in how we
handle it. trust me this journey demands (alot) patience and it
is so easy to fall into the bitterness of it. please lord open our
hearts to your fruit!

Thursday, January 10, 2013

oh blogger...

so i have a post ready to go but no photos!
i have the photos but for some reason
blogger is not doing so hot on this level
and i cannot upload any photos.

i did a lil googling and found that i am
not the only one that is having issues.
seems like they are working on the
issue.

as soon as i can upload them i will
post the next blog update!

anyone else having these issues...
 
and just after i wrote all this my computer
died...again! good thing blogger saves
as you go! ha!